My name is Metal Man age 115 living in
the mist of the middle earth but believe I once lived in Lord of the Rings... I
was diagnosed with Spina bifida at birth . Spina bifida is a
condition that affects the spine and is usually and apparent at birth. It is a
type of neural tube defect (NTD). Spina Bifida can happen anywhere along the
spine if the neural tube does not close all the way. When the neural tube
doesn’t close all the way, the backbone that protects the spinal cord doesn’t
form and close as it should. This often results in damage to the spinal cord
and nerves. Spina bifida might cause physical and intellectual disabilities that
range from mild to severe. The severity depends on and the size and location of
the opening in the spine Whether part of the spinal cord and nerves are
affected. Spina Bifida is when their is a hole in the spine bifta
incomplete spine keeping things simple! I met my twin who has a disability in a place that was to me
at a point special to many, Kids of Courage.
Spina Bifida has effected my
ability to do any activity from the waist down so I am in a wheelchair but has
effected my life drastically because I have seen people who get upset about
their disability and I wanted to and did become a life coach to show others. Their
is a whole other side to being disabled and Metal Man Life Coaching is
dedicated to showing the happiness and they have such a great life ahead. My
main challenges are the sores I get on various parts of my body, dating,trying
to take steps (but not impossible). Spina Bifida has more advantages then
disadvantages "Power to the chair" as he says. For example I get to
skip lines and makes life an adventure.
DOUBTS...they are both advantages and
disadvantages, the advantages are when others doubt and your able to do it the
sense of accomplishment feels unimaginably amazing and getting doubts in the
first place. One story is people are mislead by my diagnoses and assume I am
not as smart I actually am I have even been rejected by school for their
judgments of being called "mentally retarded". Yet, I have mastered
so much in my schooling life despite the challenges involved I achieved
receiving my Bachelor's, academic achievements and even started my own small
company Metal Man Life Coaching with a Life Coaching degree. Due to my past and helping others in Chai Lifeline,Kids of Courage and Yalla I have helped others.Out of experience and happiness and joy in helping others to pursue my career.
I have psudoseizures diagnosed at a time I am
unsure regarding the timeline.Psudo Seizures are psychogenic nonepileptic seizures (PNES), or pseudoseizures are paroxysmal episodes that resemble and are often misdiagnosed as epileptic seizures; however, PNES are psychological, emotional, stress-related in origin. Paroxysmal non epileptic episodes can be either organic or psychogenic. In college I got my first seizure after a
stressful event. I need to be cautious person yet I found an ability in me that
I am able to stop them.My doctor gave me adavan for emergencies and used to be on lexepro daily but I have gotten better and am no longer on medication. I have experienced a lot of surgeries some of which I shouldn't have survived and I got many miracles.
Hi my name is Molly or Malka Tomsky, this is not a bunch of complaining on the internet it is teaching people,raising awareness and through my own stories and others(some chose a name others use their real one) that choose to write and share and teach via this blog for those who feel they have no voice,feel unheard or people who may not be aware.This is an outlet to show people we are more then meets the eye and show others how they can handle our situations instead of being frightened,speak in a baby voice,pretend we don't exist,give us special treatment etc. You are probably wondering how I know anything on this and why I do this?My 3 siblings and myself were diagnosed young.I am 19 years and 6 months old but at 7yrs old I was diagnosed with epilepsy later on ADD, a hernia and major anxiety. My 17yr old sister with autism was diagnosed and voice was stolen at 3yrs old and 2 yrs ago epilepsy, 15yr old sister was diagnosed with autism but a mistake was made and at 3yrs old asbergers ADD and when she was 12 gain rhomatory arthritis,depression and anxiety.Finally the youngest my 12yr old brother was only 2 when diagnosed with autism and anxiety. So I know quite a bit any questions do not be shy and if you want to partake in this feel free to contact me!!!
