I am hyper to hear your story

Hi my name is Chloe I am forty nine living in Louisiana and here is my story I was diagnosed with what I thought was a relatively mild hypoparathyroid  condition when I was  a newlywed. I felt very guilty that even before we'd been married for a year, my husband had a wife with a medical issue. After about twenty years a number of things happened: bones in my feet started breaking ; and I'd end up in the hospital with other infections. Following one hospital stay I had to quit a full time retail management position because I wasn't recuperating. When I'd end up in the hospital it was up to my husband to manage the young lively children. He was always very worried about me then. It took me a number of years before I was able to collect disability. It took three appeals.Miraculously my husband was speaking about my breaking bones with a neighbor who's a very sharp Doctor. She suggested a world famous bone specialist. Turns out that years of living with my hypoparathyroid condition can cause bones to break. I was so relieved when the doctor told me he knew what I had! He told me I was one in a 100,000 people with this condition and because there are so few people with it there are no medicines for it yet. He asked if I wanted to be part of a study where in exchange for getting X-rays bloodwork bone scans etc a couple times a year and allowing them to use the data, I'd receive $6,000 a year in medication at no cost to me! They were trying to get the new medicine approved by the FDA.  I signed up. Over the past ten years I've had to give myself injections of the trial medicine. It started off as every other day but now it's every day. The medicine was just approved by the FDA and my insurance plan would pay for it but the doctor  asked if I'd help them out and continue in the study so that they could get more data, so many participants did. It's a pain to do the injections. Not actual pain-that's fairly minor-but I usually remember late at night when all I want to do is go to sleep. I also take about fifteen pills every day for related medical issues which annoy me.
When my bones were breaking I used a scooter to get around. My kids were really embarrassed to be seen with me in the supermarket. I was pretty proud of how fast I could zoom down the aisles.
I've been hospitalized with infections or pneumonia about four times. I think the average stay is about five days. I noticed that a couple times it was in the spring so this year I'm very relieved that I'm feeling good at this time.
I am constantly thinking about how I'm feeling and aware that friends are much healthier than I am. My body is just sensitive. I really struggle every day-I rarely push myself physically because I'm convinced that I won't just be exhausted or achy fora couple days but will end up in the hospital.
People have so many worse illnesses than I do. I'm happy this is all I have.